Thursday, July 3, 2014

Vaccinations?





Well I have always said I am pro-choice, for everything.  I believe people have the right to do what they want with their body and for children, parents have the right to choice what they want with their children's bodies.  However, the video attached to this article http://aattp.org/hey-anti-vaxxers-nyc-court-rules-parents-dont-have-the-right-to-send-unvaccinated-children-to-school/  about parents not vaccinating really got to me today.  I guess with everything going on in my life I am having a harder time understanding why people do not vaccinate their children.  By not vaccinating a child, that child is a potential threat to someone like me.

I hate to say that children are walking germ machines, but as a mom I know this to be a true statement.  I have cancer, going through chemo, and I am getting ready to have a stem cell transplant.  I am sick, but I am not germy or contagious.  I have a disease that is not currently preventable, Lord knows I wish it was preventable because it sucks.  Anyway, I currently try not to let my having cancer inhibit me from anything, especially being a mom.  I go to the park with my germy kid and other germy kids.  I take my kid to the play areas in the mall that are oozing with germs.  I know my immune system is low with the chemo, I get sick easy. But, I wash my hands A LOT, along with my sons, and have a constant supply of "magic soap," aka hand sanitizer. Furthermore, I try to detox my body through healthy eating and exercise so I can maintain normal mom activities with germy kids.  Of course I know I am risking by health by being around kids, but I have a kid and I am not going to make him miss out on being a kid because I am sick, with a non preventable disease.  However, with my upcoming stem cell transplant my plans of normalcy might have to change, especially with the increase in parents not vaccinating their kids and outbreaks of preventable diseases.

From what my doctors have told me, I will literally have no immunity following my stem cell transplant.  The stem cell transplant will follow some intense chemo that will kill both good and bad cells in my body, this includes my memory blood cells where immunity is stored.  Therefore it will be like I never had any of the vaccines I have had in the past.  I, a grown woman, will be like a baby with new, un-vaccinated blood.  I will need to get re-vaccinated for all the things I was once vaccinated against.  I have to wait at least six months, but closer to a year, before I can begin re-vaccinating my body since my body will be too weak to handle the vaccines immediately after the transplant.  This means cancer will get a small victory in my life because I won't get to go to the park and do what I want, be a normal mom, because of cancer.  I fear that I will be scared to go to the park since my immunity will be much more compromised than it is now.  Kids have germs and some of their germs can literally kill me.  I don't want my son to miss out on being a kid because I have cancer but I want to see my kid be an adult.  This means I may not be able to take him to play with other kids for a while.  That sucks and isn't fair.  Not saying that non-vaccinated children are the only reason I will fear going out, but it something I have to consider.  I, like all humans, am selfish so I do not like having to think about others, but when it comes to my health, I have too.  I feel like non-vaccinated children are selfish too, well their parents are, because they are not considerate of people like me who are immunocompromised.  Non-vacinated kids go to the same parks and same stores I want to go to; but I can't go because they were selfish and didn't vaccinate and think about me.  By being non-vaccinated, I risk catching their preventable illnesses.  If my cancer were contagious I would not go out, but my disease is not contagious.  If I could get vaccinated against cancer I would.  I choose to get vaccinated, heck, I want to be vaccinated, but I can't for a period of time.  This period of time makes me susceptible to a sickness that could be prevented if everyone else would not be selfish, think about me, and just be vaccinated.

This whole cancer shenanigans has made my ability to empathize towards the choice to not vaccinate difficult.  I have friends who don't vaccinate, does their choice to not vaccinate make them any less my friend? NO, it is their choice!   However, when I am not protected from preventable diseases because I have to wait to get vaccinated, it makes me hesitant to hang out with their kids. Don't get me wrong, I am still pro-choice and I choose to vaccinate.  However, now that I could be recipient of the negative that can happen when a person is not vaccinated, it makes it harder for me to see the side of not vaccinating.  

Someone said to me, "do you think maybe the toxins in all the vaccines you had contributed to your cancer?"  My response to that is "maybe".  The truth is, I have gotten this far in life without a known preventable disease.  I would rather get more vaccines and know that I am prevented from dying in a way I can control.  I would rather my death be from something I could not prevent, wouldn't you?  Cancer sucks. Period. At this point in our society there is no one way to prevent cancer.  Like I said before, if there were a vaccine against all cancer, with research to back it up, I would be in line to get it.  Now I have cancer, I pray that I will have a "cancer immunity".  Probably won't, but it is nice to believe I got it once, well twice, and after this stem cell transplant I will done with cancer.  Realistically though, cancer will always be part of my life.  Am I happy about that, NO.  However, I am happy that I have never gotten measles, rubella, hepatitis, pneumococcal disease, and countless other preventable diseases because my mother chose to vaccinate me.  It is funny that she put thought into vaccinating me and now, by me getting a stem cell transplant, her thought becomes obsolete because my body will have no record of the vaccines.  Now, as an adult I will get to choose whether or I not I vaccinate myself and I without a doubt choose to vaccinate myself.  I choose to protect myself from preventable illness.  Sure I am risking toxins in my body, but there are so many toxins on this earth now that I consider the toxins in vaccines a "good" toxin because it is helping keep me well from some diseases.  

Please let me know your opinion on vaccination.  I am not looking to change anyone's opinion on vaccination because we are all entitled to our opinion but I do love hearing both sides of an argument.  Maybe your opinion will help me empathize with non-vaccinating more.

Have a healthy day!           

Sunday, June 29, 2014

I just want to be like everybody else!

"Being special isn’t so special. You will still feel frustrated. You will still feel lonely. You will still feel like you could have done more."  This is from Mark Manson's post Being Special.  

My mom has, with the best of intentions, always told me and my sister we were special.  Sure most moms probably tell their kids this.  I know I tell my son all the time how special he is to me and how the world is so lucky to have such a special boy in it.  I am about to recant these statements and say he is not special nor am I special and nobody in this world is special.  We are all just people trying to get by.  Cancer has taught me I don't want to be "special;"  I just want to be like everybody else!  I don't like being "special."  I want to worry about the little things like what color will I paint my toe nails.  I want to get mad at the things I can't control  external to me like when traffic is bad.  Sure it is nice to not find stress in those situations that use to stress me to the max, however now it sucks knowing that I have to worry and get mad about my life.   I worry everyday when I wake up, is today my last day?  Is my tumor growing and changing my brain? I just coughed, is the cancer spreading in my body?  I don't want to be worried about these things.  I want simple worries and not to be "special."  I believe we all suffer from something, so instead of us all being "special" with that thing, we are all "not special."   For me, being "not special" makes me feel like the norm, and all I want is to be normal again.  I don't like when people classify me as different, or "special" when they find out I have cancer.  I am still just me, just that fun loving Cass-hole with a lot on her mind.

I grew up believing I was special because I seem to always be in control of my life, able to accomplish anything I put my mind too.  Well, cancer brought me down off my high horse and helped me see I am not always special and able to control my life.  I thought I beat cancer and went into remission in January 2014, then March 2014 a new tumor was growing.  Ouch, there went my ability to control cancer.  Cancer has honestly been the first thing I don't believe I can 100% control.  To take the control, the best I can, I, and those around me, have even turned my getting cancer into me being "special" because it is so unique in it's type and that it has effected me at my age.  Primary CNS Lymphoma is a weird lymphoma.  It is not like regular lymphoma where people have swollen lymph nodes.  I never had one swollen lymph node, only tumors in my brain.  People often assume that I have brain cancer since I have tumors in my brain.  I don't have brain cancer because I have Primary CNS Lymphoma.  I am "special" because I don't really fit neatly in one category of cancer.  Further I am special because I was diagnosed with this at 28, the average age is 75.  

These weird facts about Primary CNS Lymphoma makes me "special" and it sucks.  "Special" feels a lot like lonely; it feels like I am the only "special" one with Primary CNS Lymphoma and nobody understands me.  Though online I have "met" a few other "special" ones with Primary CNS Lymphoma, the Primary CNS Lymphoma crowd is not generally hanging out in the doctors office., we are a small crowd.  My transplant oncologist, nice man, said he specializes in lymphoma but has never had anyone with what I have so he has to work closely with the neuro-oncologist, who specializes in brain tumors but doesn't usually have to deal with lymphoma.  So unlike someone with say breast cancer who can see a doctor that specializes in breast cancer, I have to see two doctors who specialize, kind of, in what I have but neither has a firm grasp of exactly what I have.  I love my doctors, don't get me wrong I would not trade my care for the world, but it sucks being so unique and "special."  I just want to be simple.  My mom and husband say I am drama queen but really all I want is a simple life.  Nothing "special."  I am an organized person, I want to fit into a category like everyone else who has either lymphoma or brain cancer.  I don't want to be "special" and not fit neatly into one category. 

At the end of the day I don't want to be "special."  I just want to be like everybody else.  Cancer has made me feel "special" long enough.  I am ready for it to go away.  I think it should go away from everyone so we can all be not special together!  Then we can not do more and be simple together.  Life is simple when you are not special and that is all the "special" I need.